Tuesday, February 21, 2012

Blogging from Vandy, Day 3 (Part 3)

After this morning's dose of reality with the surgeon Jay had blood drawn for testing, and then we moved on to Endoscopy. It was much quicker than I thought. I dropped him off, went to get something to eat, and had just settled down with my computer when I got called back to recovery. Jay was dopey on Versed but stayed quiet while I talked to Jay's heptatologist (who had also done the Endoscopy).

Regarding staying quiet: Jay gets chatty on Versed and often interrupts me when I'm talking to the doctor, asking the same question over and over again, or fussing at me if I ask a question that he thinks he already knows the answer to. But he was good and remained quiet. I think he was actually still asleep for part of it, but that's OK. He started chatting when we got into the car, micromanaging my driving and such, and he even had a conversation with the doctor over the phone that he doesn't remember. But enough about Jay and Versed.

The hepatologist said that he let Jay look at the scope before knocking him out, and he even took pictures so that Jay could look at his insides. Jay has some ulcers on his stomach, which the hepatologist biopsied to see if they might be an infection that could be treated with an antibiotic. He still has esophageal varices, but that's nothing new.

I had a good heart-to-heart with the doctor about what the surgeon saw on the CT scan, and the doctor was pretty certain that the spots that concerned the surgeon wouldn't be anything that would keep Jay off of the transplant list.

What he said was this: Cholangiocarcinoma is always a risk with PSC patients. There is no way to know for certain whether he has cholangiocarcinoma until he's actually on the table and ready for the transplant. Not even a needle biopsy can give them that information. So I have a feeling that the hepatologist is going to go to bat for Jay and remind those making the ultimate decision that there is always a risk and that Jay is no different.

Phew. But wouldn't it be nice to be home free? Wouldn't it be nice not to have the risk of Jay getting ready to be transplanted and then the surgeon discovering that he has tumors and can't be transplanted. Blech.

We were going to go to a movie. Instead we went home and took really long naps.

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